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What is Cerebral Palsy

CP QOL-Child and CP QOL-Teen


The CP QOL–Child and CP QOL – Teen is a quality of life questionnaire for children and adolescents with cerebral palsy that can be used by researchers, clinicians, health professionals and educators. The CP QOL-Child and CP QOL-Teen were developed by an international team of clinicians and researchers at The University of Melbourne and the Royal Children's Hospital.

The CP QOL-Child and CP QOL-Teen were based on the assumption that quality of life is an assessment of wellbeing across various domains of life. The CP QOL-Child and CP QOL-Teen were developed from qualitative interviews with children and adolescents with cerebral palsy and their carers/parents. For further information about the development of the instruments, please refer to our publications.

The CP QOL-Child was designed to assess the quality of life of children aged 4-12 years. There are two versions, including a primary caregiver/parent report for children aged 4 to 12 years; and a self-report for children aged 9 to 12 years. The CP QOL Teen is designed for adolescents aged 13-18 years. There is an adolescent self-report version and a primary caregiver version.


What do the CP QOL Questionnaires measure?

CP QOL-Child CP QOL-Teen
Social wellbeing & acceptance General wellbeing & participation
Feelings about functioning Feelings about functioning
Participation & physical health Communication & physical health
Emotional wellbeing & self-esteem School wellbeing
Access to services Access to services
Pain & impact of disability Social Wellbeing
Family health Family health



 

 

 

 

 

References

  1. Stanley F, Blair E and Alberman E. Cerebral Palsies: Epidemiology and Causal Pathways. Clinics in Developmental Medicine No 151. London: MacKeith Press. 2000.
  2. Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, Dan B, Jacobsson B. A report: the definition and classification of cerebral palsy April 2006. Developmental Medicine & Child Neurology. 2007; 49(s109) 8-14.